YOU ARE THE SPIRIT OF THE SEASON
Thank you to all of our donors and to the almost 500 attendees at our 2016 event! We raised the spirits of many and raised funds for the HD Unit. Bob Regan, grandson of Mary and Jim White, and son of Liz and Bob Regan, once again touched us with his honesty about the challenges of HD and the importance of the HD Unit.
at the Terence Cardinal Cooke Health Care Center provides a much needed place of respite to the many individuals suffering with HD who require quality care outside the home, and serves as a lifeline to families facing the challenges of HD.
Our HD Unit is part of Papal Audience to recognize Huntington's Disease
May 18, 2017
"For far too long, the fears and difficulties that characterize the life of people affected by Huntington’s Disease have surrounded them with misunderstandings and barriers, veritably excluding them. In many cases the sick and their families have experienced the tragedy of shame, isolation and abandonment. Today, however, we are here because we want to say to ourselves and all the world: “HIDDEN NO MORE!”, “OCULTA NUNCA MAS!”, “MAI PIU’ NASCOSTA!”.
SAVE THE DATE!!! Nov. 4th 2017 - HDSA Hope Walk over the Hudson
At the HDSA Hope Walk Nov. 5, 2016 Team Bob was well represented. Bridgette Nathan, pretty in pink, was the honored guest speaker. Bridgette spoke behalf of the HD Community.
We are committed to providing the highest quality of life for the residents of the Mary and Jim White HD Unit at TCCHCC. Your support makes many things possible: therapies in art, music and massage, trips, recreation, special events, family support and more.
Stop by to visit - 249 5th Avenue New York, NY
Friday, December 1st, 2017
Our 29th Spirit of the Season
Registration details coming soon.
Contact Mary@spiritoftheseason.org with any auction donations.
Huntington's Disease is a degenerative brain disorder that slowly erodes a victim's mental capacity and physical control. HD usually strikes between the ages of 30 and 50 and progresses very slowly, on average 15 years. More than 25,000 Americans suffer with HD. 125,000 are at risk for the disease.
WHAT IS HD?
Mary Moore @ 2013